We are off to visit Martin’s biomed doctor. I made a list of issues to discuss, which includes the following:
- skin rashes, in the form of blemishes that Martin scratches and picks at until they bleed;
- itchy skin overall;
- impulsively calling out words he doesn’t mean, in a manner almost like Tourette Syndrome (Martin does not have Tourette);
- obsession with foods, allergies, which foods he can or cannot eat, which are treats, and so forth;
- trying to understand tough situations by putting Minions into those situations, like, “Bob [a Minion] was on the playground and another kid said he couldn’t use the swings. Is that nice?”;
- constantly apologizing, which has been an ongoing habit.
(There were other issues on the list, too personal for sharing on the blog.)
What are your guesses, readers? Parasites? Metals? Lyme activity because we started using cryptolepis to treat babesia? A different form of the yeast beast? Dry winter air? Noticing differences between himself and other kids?
I’ll fill you in after our appointment with the biomed doctor.
And before you worry that Martin’s recovery is off the rails, I will add the following:
First, Martin’s self-awareness is blossoming. Even his teachers have noticed. After school last week, Martin confessed that he had hurt his friend Nicole’s feelings by calling her “racist.” (In light of Black History Month and Martin’s classroom unit on civil rights, our family has been doing a lot of talking about racism and our country’s legacy of segregation. I think he was angry at Nicole, and “racist” was the first insult he happened upon.) He added, “Sometimes words come into my head that I know I shouldn’t say, but I can’t stop them before they come out of my mouth.”
Second, this morning, by phone, Adrian said, “This past month or so, I’ve been having these awesome moments with him, where he’s just acting like a regular kid, and I can finally think, ‘This is it. This is the way it’s supposed to be. This is the reward’.”
Long due note:
I’m a regular here. We are sailing the same long road with my daughter who is 3 and half. Your overwhelm me and encourage at the same time. I feel like you are a super mom to be doing all that you do. I’m shattered most of the time and come back to you for hope and guidance. I’m very curious to know where you started. I have went back and searched the blog and couldn’t find a journey type of blog. Can you write about this when you can. When did you get diagnosed, what were your earliest challenges. Where did he stand verbally when he was diagnosed? I know every kid with autism is different but I see Martin as hope and would like to get some perspective on where he started to ensure I’m keeping my recovery stories aligned.
One another point of interest is how has going back to work been? I took a brief break immediately after diagnosis and came back. I absolutely love my job and the benefits that come with it to enable us in this journey but guilty nevertheless for not making the choice to stay back.
Once again, to me you are the perfect mom I wish my daughter had. Some day I will get there.
“You … encourage me at the same time.” Thank you so much for this note. I write this blog to encourage others, as well as to provide the truth about when recovery isn’t going the way I envisioned it should. If at any point I’ve come off as “the perfect mom,” I apologize. I am far from that. Like you, I’m struggling to find my way along this path. I have written from time to time about where Martin started, but for you I will put together a post about exactly where we were when he was diagnosed. Just last week, I happened to be cleaning my office and ended up reviewing his heart-wrenching initial neurodevelopmental report, so I will start from there. Please stay tuned between now and this weekend.
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