Actualización II de Nicaragua: NicarComidaYAgua

Feeding Martin in Nicaragua is both more and less challenging than in the States.

To be sure, Nicaraguans love their packaged foods. Chips, crackers, cereals. Breads. Whatever forms of snacks.

They also love their fresh food. Fruits, vegetables. Fish and shrimp and octopi pulled from the ocean and eaten the same day. (I hate that Martin eats octopi.) By now we’ve been able to locate the stands and trucks with the produce we want. Samara has a favorite fish monger and a carnecería for occasional chicken. Virtually nothing is organic, except some newfangled greens and the occasional imported quinoa. I am comforted by the fact that the food is grown locally, where Nicaragua’s stricter stance (than the U.S.) on genetically modified crops also reduces the presence of especially worrisome contaminants like glyphosate.

Martin’s breakfast is usually grain-free pancakes (say, plantains and peanut butter), or fritters, or eggs with vegetables, plus fruit. Dinner is rice and beans, or coconut-crusted chicken nuggets with vegetables, or quinoa pilaf, or peanut-butter stir-fry, or maybe ceviche. (Samara’s ceviche skills are said to be outstanding.)

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A Nicaraguan breakfast of plantain-and-peanut-butter fritters plus apple. Did you know apples can be grown in Central America? Neither did I.

Weekdays, Martin eats lunch at his camp. That development—eating with the other kids, and mostly what they eat—has been huge for Martin, who’s wanted all year to buy lunch at his school back home, which, of course, would be inconceivable: Have you seen U.S. school lunches? Here, at the camp, lunches are prepared fresh from organic ingredients, many grown on site, with focus on health. I met in advance with one of the camp directors and asked that they respect Martin’s dairy and beef allergies, and that he not be permitted to eat any gluten. No problem, they said. The directors reported that, for the first week, Martin had “lunch worries” and needed to be persuaded each day, anew, that in fact he would be fed. At first, he ate tentatively, mostly Nicaragua’s famous rice-and-beans dish, gallo pinto, or even arroz unadorned.

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The aftermath of Martin’s octopus, rice, and vegetables on the beach.

After the tentative first steps, Martin started taking advantage of everything offered. I mean, everything!, and that’s brought some slip-ups. Even though I pack healthy snacks, he wants the snacks the camp keeps on hand for all kids, which include popcorn, commercial yucca and plantain chips (fried in who knows what sort of refined vegetable oil), French fries, popsicles with food colorings and refined sugar. I don’t like the snacks aspect but am resisting the urge to make the camp pull back; eating at camp, plus the wide availability of fresh seafood and vegetables in Nicaraguan restaurants (not much pizza or pasta getting in the way), seems to be helping to reduce Martin’s food-related anxiety. I hear less, “Can I eat this? Can I eat that?” and more, “Hey, do they have octopus? How about rice?”

We are, however, in something of a popsicle crisis. Now that Martin has tasted a frozen refined-sugar stick, my homemade frozen-fruit popsicles just aren’t cutting it anymore.

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This is a “fancy” breakfast, like we have when guests are eating with us: pancakes and potatoes cooked with shredded vegetables.

The overall picture is that Martin has been eating 93.6% well, and 6.4% sugar and junk food. When I say sugar, I mean those aforementioned popsicles but also potatoes, rice (which also brings arsenic), and fruit. The fruit includes a daily smoothie from our favorite smoothie stand. Martin selects the three fruits he wants (usually pineapple, mango, and lemon), while from behind him I mouth “¡y aguacate!” to the smoothie-maker so that he’ll throw in some avocado, too. Martin professes not to like avocado, so I have to get creative, like sneaking it into a smoothie.

A few weeks ago, I discussed the situation with Martin’s doctor back home. Too much sugar, I confessed. A whole lot of fruit. Smoothies every day.

“You mean fresh, mineral-rich local fruit?” she asked.

“Some of it directly from the fields,” I replied.

“I think he’ll survive.”

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Another breakfast, this time plantain-and-egg pancakes with pineapple and raw energy bars that I made from almonds, dates, limes, and shredded coconut.

More… Inclusive

Three months ago, I reported that food is easy. Food became easy when I shifted from a “replicate what we used to eat” and “recipe” model to a minimalist model, like “(Brussels sprouts + oil + salt) + (lentils + paste[onion + ginger + garlic + turmeric+spices]) = meal.”

I’ve had another shift when it comes to ingredients. For years I’ve thought of cooking for Martin in terms of what I can’t use. I began with, “What would I like to make?” and proceeded to, “What are the ingredients I will have to substitute?” Example: “I’d like to make muffins,” followed by, “Grain flour. And right now, chicken eggs.”

We’re supposed to be avoiding eggs again.

Now, by contrast, I’m launching meals from a new spot. The ingredients come first. I begin with, “What foods will be healing and provide Martin with the particular nutrition he needs today?” and proceed to, “How can I combine those foods into a meal?” Example: Last night I checked the kitchen. Fresh food I had on hand that Martin could eat included peppers, onions, garlic, butternut squash, apples, romaine lettuce, cauliflower, celery, duck eggs, cashew cheese, bison chorizo, and bone broth. In the pantry I had a variety of nuts, along with rice crackers, LäraBars (Martin’s fave), and cookies I’d baked from almond flour, maple syrup, vanilla, baking powder, raisins, and almond chunks.

Today’s menu for Martin:

Breakfast: duck egg cups with peppers and onions; fresh juice made from romaine lettuce and apple.

School snack: Lära Bar.

School lunch: bison chorizo meatballs with added peppers; homemade cookies for dessert.

After-school snack: rice crackers with cashew cheese.

Dinner: cauliflower “fried rice” (no actual rice) with peanuts added for protein; bone broth. In the cauliflower rice recipe, I substituted celery and squash for peas and carrots (making do with what I had), and coconut aminos for soy sauce, since Martin can’t have soy.

So go the days, now. What do I have? What’s good for Martin? From those, what can I prepare?

Tomorrow’s breakfast forecast is nut butter between two almond-flour tortillas, fried in coconut oil and cut into six wedges. School lunch is shaping up to be vegetable lentils with quinoa. Salmon is defrosting for dinner, to be paired with cultured veggies. It’s a pretty good forecast.

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The cauliflower rice for dinner. Not too pretty, but Martin ate the whole bowl without pausing.

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This is not actually the breakfast I served that day, which I forgot to photograph. This is, however, pretty typical for breakfast: coconut-flour berry muffins with homemade veggie-fruit juice.

I Am That Person. I Am That Mom

Social media. Ah, social media.

I made my first post about my uneasy relationship with social media five years ago, explaining why I blog anonymously. Two years ago, I posted again, bemoaning the lack of civility on-line, even among acquaintances.

I love Facebook, for the connections to old friends and my autism recovery groups. I also recognize the wisdom of keeping my mouth shut on controversial topics: Social media rarely allow for productive and thought-provoking exchange; users prefer to post dumbed-down memes and wait for comments that support their opinion.

What I need to get past, these days, is feeling personally attacked by others’ posts. Take, for example, this sketch that appeared recently on my Facebook wall:

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The implication? That a mother whose child eats only organic, homemade food doesn’t “live[] in the real world.” But I live in the real world. And my child eats only organic, homemade food, except for a few commercial, raw snacks and occasional meals at pre-approved restaurants.

Or how about this post?:

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Indeed! It’s me! I eat seedless (organic!) grapes and complain that GMOs are unnatural! I know the difference between selective breeding and genetic modification. Selective breeding is vertical genetic transmutation within a given species. Genetic modification is transmutation of genes horizontally, across species. Totally different.

I don’t respond. Why waste thoughtfulness?

I’m sure you can imagine how I felt when a friend posted a link to an article purportedly tying a measles outbreak to “anti-vaxx” parents and asked, “Who are these medieval people???”

Me again! Not only as the parent of an immune-compromised child, but also as an attorney, I have concerns about the current vaccination regime. We’ve exempted these potent pharmaceuticals from the usual liability schemaand the safety assessment protocol lends itself to manipulation as vaccine after vaccine after vaccine is pushed onto the recommended schedule. At the same time, legislatures are seeking to move these injections from “recommended” to mandatory, i.e., to restrict even exemptions that are based on valid health concerns. The whole pharma-driven plan invites rising vaccine injury rates, and I hope to witness more Constitutionally based challenges.

 

The list of Facebook zingers is long. I resist the urge to respond, “I’m glad you asked. I am that person.” I resist because I will end up only frustrated, and because fighting those virtual battles can sap energy from the real task at hand, Martin’s recovery.

But as usual, I am conflicted. Many of these types of Facebook “status updates” come from acquaintances who, I think, respect me and/or my professional competence. They come from law school classmates and from co-workers, from the siblings of childhood friends and from distant relatives. If I were to argue almost any valid opinion face-to-face, they would probably take note. I might even sway them.

If I am a person who may have influence over pro-vaccine, organic-bashing lovers of genetic modification, maybe I have a responsibility to speak. Or maybe—if I speak against pro-vaccine, organic-bashing lovers of genetic modification, I will lose whatever influence I have to command.

A conundrum.

A conundrum not limited to Facebook. An older relative, for no apparent reason other than knocking a chip from my shoulder, told me he was getting a Zostavax shot against shingles. I suggested that he might want to weigh the side effects, and that Zostavax is counter-indicated for people who’ve been treated for cancer (as he has). He blew off my concerns (which was likely his intent from the moment he brought up vaccination out of the blue). He said: “I believe in science.”

Science? What did you read before reaching this decision? I can show you the studies I’ve reviewed. I understand your concerns about shingles. On the other hand . . . wait. You haven’t done any research whatsoever? You saw a commercial that said a shot would protect you, so you’re going for it, no more information necessary? Good call.

Waste of breath.

When I started this blog years ago, Martin’s biomed doctor said, approvingly: “We have parents telling everyone they know that recovery is possible, and no one listens. You’re an Ivy-League-educated lawyer who can write, and a stickler for facts. Maybe they’ll listen to you.”

Maybe they won’t.

In my blog, I speak freely, When it comes to social medial, I’m better off trying to find points of agreement. Let’s go back to “Deborah,” who “loses her s**t daily & knows every honest mother does too”:

At least I can admit that I’m an “honest mother.”

Hubby Eats

Managing Martin’s recovery has taught me more than ever about nutrition.

I love my husband, Adrian, and would like to keep him healthy.

I’m kind of a control freak.

These facts were bound to collide at some point. That’s why, except when we go out for dinner or he has a business event, I now prepare every bite of food Adrian eats.

Years ago, Adrian skipped breakfast and, during the work week, bought whatever for lunch. When he decided to manage his diet better to lose a few pounds, he still skipped breakfast but I started sending lunch to the office with him. In the beginning, I sent a sandwich of cheese, fake meat (usually processed soy), greens, and mustard or vegan mayonnaise on whole-wheat bread; two fresh fruits; and two protein snacks like nuts, or veggies and hummus, or (more) cheese and crackers.

As time went on, the bread became sprouted-seed gluten-free, the fake meat became less processed and more lentil-mushroomy, and the cheese and hummus became organic.

Then the sandwiches and fake meat disappeared altogether. Then I insisted on adding breakfast at home. Then an insulated container of lentils snuck into every lunch, to make sure Adrian had enough to tide him over even when he works late (which he usually does). Then I tried to eliminate cheese snacks. That last effort, the cheese, was unsuccessful, although I did manage to switch him to raw-milk cheese, usually purchased directly from a local farm.

As of 2016, Adrian’s weekday menu is as follows:

Breakfast. Smoothie made from plant-based protein powder, nut milk, peanut butter, and frozen berries.

Lunch and snacks. Two bento-style boxes (I use LunchBots) containing avocado (South American by origin, Adrian craves avocado daily), fruits, nuts, cheese, olives, and/or raw veggies, accompanied by a hummus cup or baggie of rice crackers and a container of lentils or legumes.

Dinner: Whatever Martin is eating. Last night, dinner was white beans with home-grown-basil pesto and arugula salad from my garden. Tonight, Samara is preparing her special lentils with onion, garlic, and carrots; Adrian never minds lentils twice in one day. Tomorrow evening, Adrian and Martin will eat fish and fermented kale. In the event Adrian, a pescatarian, cannot eat what Martin is having (say, meatballs), I make him a “hearty salad,” which comprises fresh greens, berries, nuts, and seeds, dressed with olive oil and chickpea miso.

All the food is organic, except the nut milk, because sometimes I buy a brand that is only GMO-free, and the fish, which is wild-caught. Weekends, I make a full breakfast for Adrian and Martin, and we often eat dinner at a restaurant.

Adrian is a corporate attorney at a white-shoe law firm in Manhattan. Last month a visiting friend was ribbing Adrian, asking if he is the only firm partner who brings homemade lunch every day. Adrian laughed and said he didn’t care. “I like my lunch. My lunch is tasty.”

Now, if I could only get my own diet into such good shape.

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Lunch and snacks for Adrian’s day: carrots, strawberries, TigerNut flour cookies, peaches, cheese, pistachios, avocado (coated with lemon juice), grapes, hummus.

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Lentils, heated, being loaded into an insulated container to accompany Adrian’s lunch and snacks.

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More bento boxes, with oranges, pears, avocado, cheese, cold bean salad, and olives.

My New Relationship with Food, and the Kitchen-Jar Rule

Martin’s dietary needs are leading me to a new relationship with food.

That’s a whopper (excuse the pun?) of a cliché, right?—a “new relationship with food.” Sorry. I’m not coming up with a better way to phrase this phenomenon.

I’m not an unhealthy eater. I wasn’t an unhealthy eater before this chapter, and I’m not now. I’m vegan. I watch my fats and proteins and vitamins. I love to cook and have always done plenty of it, whenever my schedule permits.

Yet until we undertook biomedical intervention and radicalized Martin’s diet, I put relatively little thought into additives, colors, and processed food versus natural. For example, I prefer to make hummus at home, because I can control the amount of tahini (just a dollop) that I add as opposed to lemon juice (plenty) and garlic (vampires refuse even to enter my neighborhood). But from a nutrition perspective, I gave little weight to the difference between (1) blender-whirring raw materials into hummus and (2) buying hummus preserved with potassium sorbate. (Wikipedia: “Potassium sorbate is the potassium salt of sorbic acid, chemical formula C6H7KO2. Its primary use is as a food preservative (E number 202).”) Nor did I consider the benefits of fresh-squeezed lemon juice over made-from-concentrate lemon juice purchased in a green-tinted plastic bottle that also contains sodium benzoate, sodium metabisulfite, and sodium sulfite.

Martin’s diet, along with its other restrictions, excludes additives and preservatives—or as I like to call them, non-food items in food. That means just about any processed food is off-limits. Even when it comes to meat: The meat we purchase must come from animals who ate unprocessed (minimally processed, at most) grains grown without pesticides.

The fact that Martin, who is so sensitive, has responded so well to the removal of non-food items from his diet got me questioning whether fresher and more natural foods would not benefit the whole family. Neither Adrian nor I suffer neurological impairment or, to my knowledge, complications with digestion or nutrient absorption. Therefore, we probably would not experience dramatic changes like Martin’s. On the other hand, what if reducing our intake of non-food items makes us sleep (a little) better, and feel (a little) more energetic, and concentrate (a little) steadier, and possess (a little) sunnier outlook? Might we not end up (a lot) healthier?

Now that I’m no longer employed, I’ve been implementing this like crazy. No more casual eating on the run. On weekday mornings, Adrian and Martin get up at 7:00 a.m. and leave home together at 8:05 a.m. to meet the school bus, after which Adrian heads to work. I, on the other hand, rise at 5:45 a.m. I cook the boys’ breakfasts; organize Martin’s supplements; prepare Martin’s lunch, beverage, and school bag; and also assemble lunch, one protein snack, and two fiber snacks for Adrian to carry to the office. (If the 5:45 a.m. thing is killing me, then at 8:06 a.m. I hop back into bed for an hour.) During the week, no food enters my guys that I have not made myself, except for Martin’s snacks and crackers baked by my mother.

My new standard for the grocery store is the “jar in my kitchen” rule. Mostly I buy fresh vegetables and bulk dried beans, i.e., unpackaged raw ingredients. (No meat or eggs at the grocery store; those I find at the farms or farmers’ markets.) As to anything I want that comes in a package, I search the label for ingredients I could not imagine keeping in a jar in my kitchen. The more ingredients I would not keep in a jar in my kitchen, the less willing I am to purchase. For example, this week I picked up the following packaged items:

•            Shim’on Ariche harissa. Ingredients: hot red peppers, garlic, water, salt. Unfortunately not organic. Still, all kitchen-jar approved.

•            Imagine creamy tomato soup. Ingredients: filtered water, organic tomatoes, organic onions, organic rice syrup, organic celery, sea salt, organic expeller pressed canola oil and/or safflower oil and/or sunflower oil, organic spices, organic garlic powder. The reference to unspecified spices gives me some pause. Homemade tomato soup would be preferable, but alas, a day has only so many hours for the kitchen. Overall, the Imagine soup is kitchen-jar approved

•            Orgran toasted buckwheat crispibread. Ingredients: buckwheat, rice, salt. Easy call.

•            NaSoya Nayonaise (vegan mayonnaise). Ingredients: soymilk, soybean and/or sunflour oil, cane syrup, vinegar, salt, mustard, apple cider vinegar, lemon juice, guar gum, xanthan gum, and sodium alginate. Caution! I was okay with everything until guar gum, xanthan gum, and sodium alginate. Not kitchen-jar approved. But in the end, I did buy the Nayonaise. I wanted it for a creamy salad, i.e., as a minor ingredient in a dish headlined by red bell pepper, pear, apple, daikon, onion, carrot, celery, and turnip. Not perfect, but some allowances must be made for tastiness.

My kitchen-jar rule is made easier by some unusual ingredients in my kitchen. Rice syrup, for instance. Though it’s not approved for Martin, it makes a gentle sweetener for my grown-up baked goods. Or lecithin. Lecithin pops up in many packaged food, and as it so happens, I do keep a jar of lecithin in my kitchen. It’s Love Raw Foods sunflower lecithin, a supplement we use for Martin, from Blue Mountain Organics.

In summary, I have Martin eating 98% fresh, 100% natural, and 99% organic. For me and Adrian, probably 80% fresh, 99% natural, and 80% organic (taking into account our weekend tendency to eat at restaurants).

There’s still the issue of our four cats. Currently, they eat Nature’s Variety canned food and dry food. I wish I could do better for them. When I was in graduate school, and had grad-student amounts of time on my hands, I made cat food at home. William the cat, who has long since died, was particularly fond of a garbanzo-based concoction I used to make with Harbingers of a New Age supplements.

Maybe someday I’ll manage a triumphant return to homemade cat food. Maybe when Martin is recovered.

Until then, alas, I repeat: A day has only so many hours for the kitchen.

George the cat, Martin’s best friend. Actually, the only of our four cats who tolerates Martin.

What’s Disappeared

It’s accounting season. Adrian’s assistant has prepared a summary of what our family spent last year on recovering Martin. Supplements, therapies, unreimbursed doctor bills, plane tickets to see specialists, that sort of stuff. It does not include expenses associated with Martin’s restricted diet, like buying only organic or making weekend farm visits for meat. Nor does it include my kitchen make-over, continually purging plastics and aluminum in favor of glass or stainless steel.

Even without the foods and cookware, the total is a large number. Not astronomical. Not bank-breaking. But large.

“Did you think it would be this much?” Adrian asked me.

I replied, “I’m looking at it like this: If someone told us last January, ‘Give me this amount, and within a year Martin will respond to his name, will make eye contact consistently, will interact with friends, will move like a neurotypical child, and will speak in complete sentences,’ we would have written that check, right?”

“Of course,” Adrian said.

He seemed mildly offended that I’d asked the question. But I was on a roll.

“And if someone told us last January, ‘Give me this amount, and within a year Martin’s lethargy and toe-walking and aimless drifting and low muscle tone and sleep problems and clumsiness will be gone, and his echolalia will be nearly gone,’ we would have written that check, right? Because that’s where we are. That’s what’s disappeared.”

Adrian waved his arm in agreement, putting an end to my roll. “We would have paid ten times so much. You know that.”

“So let’s keep it going,” I said.

And we fist-bumped.